Wednesday, 8 September 2010

Ahhh independence, how I miss you!

Hmmm it seems like so long ago since I last wrote here! To pick up from where I left off....

I had a respiratory outpatient appointment to assess whether I was well enough for the second dose of Omalizumab. I was, and was told to return the next day for the injection. All day I felt poorly, spent the night being sick and retching, which in turn made me feel wheezy and generally rubbish so I didn't end up having the Omalizumab :-(

After this, I decided that I needed to whack my Pred up to 60mg as I was off to Manchester to stay with a friend and didn't want to end up having an asthma attack up there! Pred took a few days to kick it but finally did. First night in Manchester I went ice skating, fell over and ended up spending a few hours in A&E to be told I'd suffered a broken Scaphoid (small bone in hand, very commonly broken during a fall), and had my first ever plaster cast!
Saw my favourite band whilst in Manchester - Muse!! I <3 Muse, they're absolutely amazing live.
Had a lovely time whilst in Manchester, but to be honest, I was very glad to get back home for a few reasons.

By the time I got home my poor hand was really starting to hurt, so the day after I took myself off to the local MIU to get it looked at and try to arrange an appointment at the fracture clinic. Turns out that not only did I break my scaphoid, I also chipped a bone in my wrist and broke my radius (big bone in wrist). The hospital in Manchester had put a full cast on which hadn't allowed for the wrist swelling hence the increasing pain!
Ughhhhh, I'm so over public transport already. I hate hate hate not being able to drive, struggling to do pretty much everything, not being as independent :-( Ah well, it could be worse. It was my left hand and I'm right handed....

Monday I had a phone call from my respiratory consultant's secretary asking me to go in and see him today. I went in fully expecting to be moaned at over the Omalizumab situation and be told that I couldn't have it again. I didn't get moaned at (lol) but I was told that the Omalizumab isn't going to work if I'm not 'well enough' to have the injections, which is perfectly understandable. So the plan is, I have the injection next week (if well enough!), then I think if we can't get into a routine with it then that will be the end of that :-(
I've never believed all the hype that it's a wonder drug so I'm not THAT upset, but I have been pinning quite a few hopes on this drug - that it would make even a small difference. The next step would be to try drugs like Methotrexate, and I'm really not keen on that idea.

My consultant is also going to arrange for me to have a DEXA scan in view of my poor wrist. I had one about 5 years ago which showed my bone density was below what it should be, and I was put on preventative medication to stop it from getting any worse. Hopefully I just landed badly and the pretty much continuous steroids haven't caused me any more problems :-(

And that is that. I'm pretty fed up in general but that's purely because of my wrist - I hate struggling to do simple things and not being able to just get in my car whenever I like. I live in a rural area, the only thing within walking distance is a farm shop and buses are less than hourly. Beats where I used to live where buses were weekly I guess!!!!!!!

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