I'm winning!

Well this is a long overdue post, and finally I have something good to write about!


I had to travel to London for a hearing to decide whether I could return to working as a nurse. To cut a very long story short, although this whole nightmare isn't over, I've been given the go ahead to go back to nursing!!!! I've been off for 4 years so I need to get myself on a Return to Practice course before being allowed to return to my old job. I'm happy with that, it's only a 4 month course, and will help update me but also help me with gaining back my confidence. I've applied to start a course in January, so now I'm just waiting to hear about that :) :)


This hearing was the reason I was so desperately trying to keep myself out of hospital, that I mentioned in my last post. Since my last post I've had a further hospital admission, but I know that was caused by me stressing myself out over the hearing. Even though my lungs have been a complete nightmare over the past few months, I'm not overly concerned that they're bad enough to stop me from working. The prophylactic Doxycycline seems to be helping, and now this period of stress is over, I'm hoping that I can get these lungs behaving themselves again. Well, as behaved as they're ever going to be!!


So there we have it, 4 years of seemingly never ending stress, worry and fighting has finally started to pay off :) Now, I just need these lungs of mine to cooperate with me just a little, to calm down as they're still on the twitchy side.......


Methotrexate has been brought up yet again as a potential drug to try, I don't know anyone who has been on Methotrexate for asthma, so if anyone has any input/advice/experience, I'd be very grateful to hear what you have to say!!!!!

Scary medications

I've been lying low and keeping quiet lately, 'things' aren't going so well and posting the ins and outs of my life online doesn't really appeal to me! So, concentrating on these lungs of mine;

I had a review with my respiratory consultant, we agreed that Azithromycin wasn't doing anything for me so that was stopped. He brought up Methotrexate. When I hear that drug I automatically think 'cancer', which leads to 'horrible side effects', so I said I was pretty reluctant to take drugs like that. Since the appt I've read up on Methotrexate and seen that it's actually used in a few other conditions too, and some people with severe/brittle asthma have found it very helpful. Food for thought.... I'd love to hear any experiences from anyone who has taken it!

I mentioned in my last post that I'd been feeling pretty unwell. This week it got worse, I rarely get chest infections but I really felt like I had one. So I made an appt to see my GP that afternoon, by the time of the appt I felt better. I HATE it when that happens!! Obviously I like feeling better, but it's so annoying when I end up saying - I feel okay now but earlier I felt really ill and was coughing up gunk blah blah blah. Anyway, if it had been my old GP I would have cancelled the appt but my new GP is so lovely. He has A&E experience so he understands asthma that can quickly deteriorate, for me this is great! Outcome was, I have a course of antibiotics to take and had to bump up the Pred again :( I felt so much better after a few days and my peak flows have started to pick up again, so it's all good :)